Saturday 9 November 2013

Stelbid

Ok, so I have tried Stelbid a few times, on an as need basis, and noticed that it didn't really do anything for me. Let me give you some information on Stelbid.

Firstly you cannot buy Stelbid in Australia. My father picked some up for me from India.

The ingredients include Isopropamide Iodide and Trifluoperazine and is largely used for gastrointestinal disorders.

Isopropamide is an anticholinergic which block the neurotransmitter acetylcholine in the brain. Pretty much they help reduce spasms in the gut.

Trifluoperazine is an antiphsychotic that blocks receptors in the brain's dopamine pathways and also act on serotonin receptors. So this I guess helps with the pain levels and emotional side of things related to the gut.

My doctor informed me to just take as a need to basis. So when I was feeling bad I should take the medicine. So I tried that about 4-5 times and noticed no improvement in symptoms.

It has been a while since I have given you an update on symptoms. Currently I am still in pain everyday, mainly mornings and evenings, but the afternoons get their fair share of pain at times. So basically, have I improved much? I would say no. Although my diet does help a little, I am not close to being cured.

:(

Sunday 15 September 2013

Foods to Avoid

Hi Guys,

Thought I'd just give a bit of an update. So the website www.ibs-experiment.com now has a forum so we can all share our stories and treatments. I'll implement soon on the website a Recipes page. Some good recipes that are gentle on the digestive tract. Feel free to share some of your recipes as well. Am more than happy to put them onto my website.

I'm finding Gut Relief to be quite good. Although I still get pain and discomfort everyday the overall intensity has seemed to lessen a bit. Hopefully by summer I'll be much better and will be able to actually enjoy my summer. Haven't been to the beach in ages!

So yeah, back to topic. Thought I'd mention foods that I avoid.

Red meats
Alcohol
Caffeine
Fried foods
Chilly foods
As much sugar as a can because it feeds bad bacteria. I can't resist so I do eat a little chocolate, but only a spoon of Nutella from time to time.
Lentils
Cabbage
If I eat fruit I only eat a little at a time, such as half an apple instead of the full apple
Processed foods such as packet pasta

Basically what most of it comes down to is that I never eat a large amount of one item in one sitting. For example a pasta dish, I'll have a little pasta with a decent amount of vegetables and salad. This rule I've given for myself seems to be helping. It helps to avoid those crazy horrific pain attacks.

xoxo

Thursday 8 August 2013

Stop telling me I'm too thin

Because of my IBS I have no choice but to stay on a very restrictive diet, not unless I want large amounts of abdominal pain. As such I cannot eat all those foods that help one to gain weight and I can't eat large amounts at any given time. I can't eat fried foods, or lots of chocolate, or lots of hot chips, but I can assure you, sometimes there's nothing more I want to do but to eat those things. Daily I have to stop myself because I know the consequences of eating those types of foods, and that's a lot of physical agonising pain. So when people tell me that I'm too thin and need to gain weight, I'm sorry, but please shut your big gob. I've already got problems, I don't need additional personal self image loathing mind disabilities either, like BDD. Now whenever I look in the mirror all I see is ugly and too skinny. So please please please stop commenting on my weight. It's not helping.

And that's my rant for the day.

Cheers :)

Sunday 14 July 2013

Mindfulness Meditation

Ok, so I just completed a course of mindfulness meditation. The course lasted for 8 weeks with weekly sessions and I do recommend doing this sort of course even if you are healthy because it can also help with anxiety, stress, insomnia, and general well being. Alternatively, any meditation is good for you and won't hurt in the slightest. So if you don't want to commit to an 8 week course, that's cool. Maybe just try going to one open session. Some places may even provide for free.

Here's a little bit of information on mindfulness meditation.

Mindfulness meditation has been practised for centuries in the East. The benefits of this practise has now been recognised by the West, and, in particular, in certain medical settings for those with a chronic illness.

A chronic illness is for life. Learning strategies to emotionally manage the ups and downs of the illness can assist in recovery.

Learning strategies to manage stress encountered in day-to-day living has been shown through much research, to aid in the management of symptoms.

The program has demonstrated for many years, after rigorous evaluation, that ongoing practise, using Mindfulness Meditation as an anchor to Mindfulness-based Stress Reduction and Mindfulness-based Cognitive Therapy, can be effective in the management of depression, anxiety, panic disorders, and, disordered eating: conditions which are often associated with trauma, chronic and gastrointestinal disorders.

Mindfulness-based program offers developing skills and knowledge, by direct experience and practise, to cultivate attitudes of:
- Patience
- Compassion for oneself
- Open-mindedness
- Gentle persistence
- Being in a different relationship with one's thoughts and feelings

Thursday 2 May 2013

Naturopathy

Update 5/4/2015
My naturopathy regime has changed. I ended up with a different naturopath that appears to be more attuned to my requirements. Please refer to http://shikzblog.blogspot.com.au/2014/02/leaky-gut-syndrome-damaged-microvilli.html for further information.

Update 15/7/2013
Ok so still taking naturopathy. I don't mind taking it on a long term basis because it's all good for you regardless on whether you are unwell or healthy. Slight changes to what I'm taking:


- Just before breakfast and dinner I take Nutrition Care Gut Relief. Here's a link to detailed information about the ingredients. http://www.vitalityandwellness.com.au/Nutritional-Supplements/gut-relief-compound. I believe this helps to repair cell damage and reduce inflammation.

- After every meal I take a herbal tea. At the moment the tea just consists of peppermint and chamomile, but before I took a tea which had ginger, peppermint, chamomile, marshmallow (not the candy :P), and lemon balm. That was a very nice tea and all very safe to take.

- With breakfast I'm taking one Thompson's Kava tablet. Here's some info on Kava. http://thompsonsnutrition.com.au/kava/index.html. It's meant to help with stress and anxiety. Apparently meant to help numb the inside a little as well.

- Before bed I'm taking Symbiotique Probiotics in powder form. I just take it with water. It's got a good strain of probiotics. Better than tablets and yakult.


I'm still symptomatic daily but sometimes I feel that it is becoming a little more tolerable, except for of course around that time of month. So hopefully with continuing with what I'm doing things will gradually get better. *Fingers crossed*

Update 10/6/2013
So I've been taking the naturopathy treatment for about a month now. I do believe that the treatment is helping to calm things down a little, but I still have daily symptoms.

There's been a slight change from what I was taking previously. I'm still taking probiotics, herbal tea, Lavandula and fennel drops. The only change is that I've currently stopped taking slippery elm and taking a product twice a day called 'BioMedica EnteroCare' instead, which consists of the following ingredients:

Glutamine
Slippery Elm
Apple Pectin
Prebiotics
Probiotics

My understanding is that this product is meant to help aid in the recovery of damaged cells. Apparently it helps to reduce healing time after operations.

I saw a gastroenterologist recently and he pretty much said that in cases of post infectious IBS the first two to three years is bad and usually after this time symptoms start to improve. All you can do in the interim is attempt to take products, such as herbal teas, relax and follow special diets to try to relieve symptoms until the body neutralises.


2/5/2013
I started to see a naturopath a few weeks ago and she put me on a treatment to assist with healing my digestive tract, improving my strength and reducing my anxiety and depression. After a few weeks I actually think that I'm starting to feel a little better. It's still early days but severity of pain has seemed to lessen. There's still a bad flatulence level, but she mentioned that with time that will improve as well.

I am taking the following naturopathic treatment:
1. BioCeuticals Symbiotique probiotic powder upon waking and before bed
2. Slippery Elm before each meal
3. Customised herbal tea after each meal
4. Nutri Medicine Lavandula compound before bed
5. Fennel drops

The probiotic is to help improve gut flora. Even though I was taking yakult everyday this is a stronger probiotic. Not as strong as VSL#3, but more for taking long term. And because you're taking one teaspoon morning and night you're saving a lot of money as it lasts longer.

The inner bark of the slippery elm tree has been used as a herbal remedy for centuries. Native Americans traditionally used slippery elm in healing salves and poultices for wounds, boils, ulcers, burns, and skin inflammation. On contact with water, slippery elm powder becomes mucilaginous (slimey, gel-like) in texture which accounts for the majority of its medicinal properties. It has demulcent (soothing) actions on all mucous membranes, including those of the digestive tract, urinary and respiratory tract and also soothes the skin on contact. It also has astringent effects, tightening the surfaces on which it contacts, providing an effective barrier to bacterial infection and alleviating diarrhoea. Slippery elm is also rich in nutrients and can be used as a gruel for infants, invalids and patients with intestinal inflammation.

The customised herbal tea consists of zingiber officinale, mellissa officinal, mentha piperita and althaea officinale. Similar to Iberogast but stronger, and apparently better for the digestive tract when taken in tea form. It's used to assist the food to digest and reduce gut spasms. It also has healing properties.

Lavandula Compound is designed to naturally help relieve the symptoms of nervous tension, stress and anxiety. It is also a mild sedative and assist with a better nights sleep. I believe this is prescription only.

Fennel is used to reduce flatulence and aid in digestion.

So I will continue taking this treatment. It definitely hasn't had a negative impact so far. Will inform you of progress after a months time.

Friday 29 March 2013

Motilium for Gastroparesis

3/5/2013
Future Update

I would have to say that Motilium has not really been effective for me. I have now reduced to taking once a day before dinner and will eventually stop altogether. I have recently started a naturopathic treatment which actually seems to be helping a little so far. Please see my post on Naturopathy for further details.


29/3/2013
Motilium (a.k.a. Domperidone) is an antidopaminergic drug and used generally to suppress nausea and vomiting, as a pro kinetic agent and for promoting lactation.

There is some evidence that domperidone has antiemetic activity. Domperidone is used in the treatment of nausea and vomiting. In Italy it is also used for gastroesophageal reflux disease (GERD), as well as for hiatal hernia.

Domperidone has also been found effective in the treatment of gastroparesis, a stomach motility condition, and for paediatric gastroesophageal reflux (infant vomiting).

So I've been taking Motilium for about three weeks now for my gastroparesis. Good news is that there hasn't been any negative side effects. Problem is symptoms do not appear to be improving much at all.

I plan to take it for another month to see if it helps in any way, but to be honest, I was sort of expecting to see results straight away. Perhaps I need to give it a little time.

Thursday 14 February 2013

I'm Engaged!

I realise to some that this may be off topic, but in a way, it isn't. IBS can take over a person's life for years, and although it currently has stopped me from socialising, working and dancing, it hasn't changed me as a person. I still have my views and opinions, my beliefs and scepticism, and my love and admiration for my partner. And despite the limitations, frustrations, hatred and disappointments related to this illness there is still a little light glowing in the darkness. No matter how unworthy you think you are there are others out there that think otherwise.

I hope for all those suffering, despite the difficulties, that you do manage to find a little happiness.

xoxo
Shikz

Wednesday 6 February 2013

New IBS Website!

12/01/13

Oops, forgot to update. The website is working just fine. It is very informational and has a forum for discussion.
______________________________________________________
23/4/13

Ok, there is something technically wrong with the website. It's stopped working for some reason. Will need to look into it. However, you can still visit for information relating to different available treatments for IBS.

The data collection process is what's causing me a little grief.

Will keep you posted to when it is fixed.

Shikz

---------------------------------------------------------------------------------------
Hey Guys,

Ok, so the website I have been working on is up on the internet. The link is below.

www.ibs-experiment.com

It's still not 100% complete, but it's getting there.

Grabbed the following info from the website:

This website aims to gather the knowledge and experience from each individual that currently has or have had IBS by creating a database of information on treatments that are most effective and plot this information into a visual graph available for the public. 

FYI, the website currently does not have enough data yet, but I would really appreciate it if people would go visit and contribute wherever they can.

You can write comments on each of the different treatments, submit answers or even make any requests or recommendations by simply writing to admin@ibs-experiment.com.

I want this website to be for the people so any idea or contribution is welcomed.

Thanks,
Shikz

Enzymes low, Gastroparesis & Hypersensitivity

30/3/2013
I tried digestive supplements for only 4-5 days because they seemed to make symptoms worse, so I stopped them immediately.

6/2/2013
Yes, I am still suffering on a daily basis. Wish I could provide those who are suffering with better news.

Is this difficult to cope with? Definitely. Have I had enough? OMG yes! Is this ever going to end? Wish I knew.

Rewind

About a month ago I caught up with my Gastroenterologist to discuss the results of my colonoscopy and he did find something. My enzyme levels were low in lactase, sucrase and maltase. These enzymes are important because they help to digest the foods.

In addition to the colonoscopy I went through a Gastric Emptying test. This test found that my rate of digesting liquids and solids took roughly double the time of an average person. In other words I have Post Infection Gastroparesis. Yeah, I didn't know something like this existed either. And yes, it does explain why I have so much gas because the food is staying in me for longer and fermenting longer.

The low enzymes and gastroparesis go hand in hand. I'm sure that if my enzyme levels increases my rate of digestion would increase as well. My homeopath and dietition recommended that I take enzyme supplements for a little to aid in my digestion until my body goes back to normal. Makes sense. Could give this a try. Might help? Only one way to find out.

So after every single test I have done, and I have done A LOT, I believe I have come to the conclusion of the specifics of what is currently wrong with me. 

1. My enzyme levels are low

2. My bacteria is imbalanced

3. I have post infection gastroparesis (the rate of my digestion is too slow)

4. I have oesophagitis (inflammation of the oesophagus) / acid reflux

5. I have hypersensitivity in the gut (e.g. [analogy] someone decided to bleach their teeth too much and as a result their gums nerves became very sensitive so whenever they ate something it hurt)

I guess all of this equates to IBS in a nutshell? Have I solved the riddle of IBS?

So now that we've figured out everything that is wrong. What can we do to fix this?

 1. Take enzyme supplements and continue with homeopathy (which is meant to aid in enzyme balance)

 2. Keep eating yogurt and/or yakult everyday, or some other probiotic

 3. Hopefully when enzymes are balanced this will increase rate of digestion, but in the interim do the following:
 - eat 6-8 meals a day
 - eat slowly and always have a single course only
 - small early light dinner - chew food thoroughly
 - soft to liquid consistency meals will digest easier
 - soft well cooked meats such as fish, and chicken
 - eat small amounts of hight starch foods such as rice, bread and pasta
 - eat fruit, vegetables and salads - soups are proven to cause less bloating than solids
 - drink Ensure Plus 2 or 3 times a day (Ensure plus is a liquid supplement drink full of vitamins and minerals that aid in health, strength and immunity and is easy to digest)

 4. Take somac everyday

 5. Try to avoid stress as much as possible

With the above, if you have IBS I'm not suggesting that you go out and start eating enzyme supplements, but it might not hurt to discuss with your doctor the possibility of having low enzymes, bacteria imbalance, gastroparesis, etc.

I hope that this information has been helpful for some people and I hope that it will help towards putting an end to the suffering.

Shikz

P.S. I'll let you know how the enzyme supplements go. I haven't started to take them yet. Will start within the week.

Wednesday 9 January 2013

On the Mend: Status 4

Merry Christmas and Happy New Year everyone!

 I hope that you all had a wonderful christmas and new years despite all the abdominal pain and discomfort. :|

 Thought I would keep everyone in tune as to progress since it's been a while since I last wrote.

 So I've been on Homeopathy medicine for about 5 months now. Alas, I still experience pain every day, so do I believe that it's working? After such a long time most likely not, will be honest, but I'm still taking the homeopathic treatment. It's not making it worse so I guess I have the slightest hope that it may be doing something. False hope perhaps?

 My boyfriend believes that I'm getting better, however, I can't tell anymore. I guess it's just been so long and so much suffering that I no longer can distinguish anything anymore. I probably already mentioned this before, that I probably won't be able to tell if I'm getting better until the pain completely disappears. Perhaps Glen is right, it's only a matter of time. No treatment will provide relief.

 I know, probably not the answer you're looking for.

 It is bizarre really. I did have a colonoscopy performed and the specialist checked for everything, but nothing was found. Amazing how nothing can cause so much pain and distress. Makes no sense, yet it exists. And there's my 2 seconds of D&M.

 Despite the negative news, which I apologise for, I do intend to continue working towards a solution, even if it is just a matter of time. Keep in mind though that all the treatments I've tried may not necessarily be very effective on me, but may be effective on you.

 I am currently in the process of creating a website. The idea of this website is to see which treatments people have tried which are most effective for the majority. Sort of like a stats website for IBS treatments. I'll let you know when the site is ready. I'm hoping the information gathered will be useful in the future for others and myself suffering from IBS.