Thursday 14 February 2013

I'm Engaged!

I realise to some that this may be off topic, but in a way, it isn't. IBS can take over a person's life for years, and although it currently has stopped me from socialising, working and dancing, it hasn't changed me as a person. I still have my views and opinions, my beliefs and scepticism, and my love and admiration for my partner. And despite the limitations, frustrations, hatred and disappointments related to this illness there is still a little light glowing in the darkness. No matter how unworthy you think you are there are others out there that think otherwise.

I hope for all those suffering, despite the difficulties, that you do manage to find a little happiness.

xoxo
Shikz

Wednesday 6 February 2013

New IBS Website!

12/01/13

Oops, forgot to update. The website is working just fine. It is very informational and has a forum for discussion.
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23/4/13

Ok, there is something technically wrong with the website. It's stopped working for some reason. Will need to look into it. However, you can still visit for information relating to different available treatments for IBS.

The data collection process is what's causing me a little grief.

Will keep you posted to when it is fixed.

Shikz

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Hey Guys,

Ok, so the website I have been working on is up on the internet. The link is below.

www.ibs-experiment.com

It's still not 100% complete, but it's getting there.

Grabbed the following info from the website:

This website aims to gather the knowledge and experience from each individual that currently has or have had IBS by creating a database of information on treatments that are most effective and plot this information into a visual graph available for the public. 

FYI, the website currently does not have enough data yet, but I would really appreciate it if people would go visit and contribute wherever they can.

You can write comments on each of the different treatments, submit answers or even make any requests or recommendations by simply writing to admin@ibs-experiment.com.

I want this website to be for the people so any idea or contribution is welcomed.

Thanks,
Shikz

Enzymes low, Gastroparesis & Hypersensitivity

30/3/2013
I tried digestive supplements for only 4-5 days because they seemed to make symptoms worse, so I stopped them immediately.

6/2/2013
Yes, I am still suffering on a daily basis. Wish I could provide those who are suffering with better news.

Is this difficult to cope with? Definitely. Have I had enough? OMG yes! Is this ever going to end? Wish I knew.

Rewind

About a month ago I caught up with my Gastroenterologist to discuss the results of my colonoscopy and he did find something. My enzyme levels were low in lactase, sucrase and maltase. These enzymes are important because they help to digest the foods.

In addition to the colonoscopy I went through a Gastric Emptying test. This test found that my rate of digesting liquids and solids took roughly double the time of an average person. In other words I have Post Infection Gastroparesis. Yeah, I didn't know something like this existed either. And yes, it does explain why I have so much gas because the food is staying in me for longer and fermenting longer.

The low enzymes and gastroparesis go hand in hand. I'm sure that if my enzyme levels increases my rate of digestion would increase as well. My homeopath and dietition recommended that I take enzyme supplements for a little to aid in my digestion until my body goes back to normal. Makes sense. Could give this a try. Might help? Only one way to find out.

So after every single test I have done, and I have done A LOT, I believe I have come to the conclusion of the specifics of what is currently wrong with me. 

1. My enzyme levels are low

2. My bacteria is imbalanced

3. I have post infection gastroparesis (the rate of my digestion is too slow)

4. I have oesophagitis (inflammation of the oesophagus) / acid reflux

5. I have hypersensitivity in the gut (e.g. [analogy] someone decided to bleach their teeth too much and as a result their gums nerves became very sensitive so whenever they ate something it hurt)

I guess all of this equates to IBS in a nutshell? Have I solved the riddle of IBS?

So now that we've figured out everything that is wrong. What can we do to fix this?

 1. Take enzyme supplements and continue with homeopathy (which is meant to aid in enzyme balance)

 2. Keep eating yogurt and/or yakult everyday, or some other probiotic

 3. Hopefully when enzymes are balanced this will increase rate of digestion, but in the interim do the following:
 - eat 6-8 meals a day
 - eat slowly and always have a single course only
 - small early light dinner - chew food thoroughly
 - soft to liquid consistency meals will digest easier
 - soft well cooked meats such as fish, and chicken
 - eat small amounts of hight starch foods such as rice, bread and pasta
 - eat fruit, vegetables and salads - soups are proven to cause less bloating than solids
 - drink Ensure Plus 2 or 3 times a day (Ensure plus is a liquid supplement drink full of vitamins and minerals that aid in health, strength and immunity and is easy to digest)

 4. Take somac everyday

 5. Try to avoid stress as much as possible

With the above, if you have IBS I'm not suggesting that you go out and start eating enzyme supplements, but it might not hurt to discuss with your doctor the possibility of having low enzymes, bacteria imbalance, gastroparesis, etc.

I hope that this information has been helpful for some people and I hope that it will help towards putting an end to the suffering.

Shikz

P.S. I'll let you know how the enzyme supplements go. I haven't started to take them yet. Will start within the week.