Ok, I did mention that I'll keep you informed of how things were going. I haven't yet seen my specialist, so I haven't started the antibiotics yet. I'll be seeing him in roughly a weeks time.
I have finished my course of VSL #3 and am still on the FODMAP diet and Endep. Refer to previous posts for more details on these products.
I'll be honest, the FODMAP diet does not seem to have much effect on me. Granted, too much wheat and onions do seem to cause a bit more trouble, but only if I eat in excess. Since I have started it and to this date, however, there has not really been much changes to my symptoms.
The VSL #3 did seem to help a bit, but not completely, and since I've stopped I seem to be reverting slightly, and I'm not quite sure what Endep is doing.
Current symptoms:
- I often tend to spit a bit of mucus with blood in it usually in the mornings. I am assuming this relates to reflux but I cannot be sure
- When I am ready to go to sleep and lie down in bed I experience abdominal discomfort and mild pain. I also experience discomfort at the back of my throat and chest
- In the evenings, around dinner, I usually experience discomfort and mild to medium pain
- From time to time I experience excruciating pain where I just want to die
- I still have excess flatulence
- Majority of the time I feel weak and fatigued
So overall, not quite the results I was hoping for at this point of time. I do believe continuing with VSL #3 cannot hurt. Even the mild dose of Endep should not cause too much harm.
I am concerned about the FODMAP diet because I do not want my body getting used to eating such a limited amount of food. It is also practically impossible to dine anywhere on this diet. To me, the FODMAP diet does not seem to be a solution. Having said that, the dietician did warn me that this diet may not have any impact on me. In other words, my problem does not appear to be food related because when I had honey or mushrooms in the past this did not seem to trigger abdominal discomfort or pain and these foods have high levels of fructose in them. Of course, when one does have abdominal problems it is just common sense not to eat too much fatty foods or sweets, or foods that are hard to digest anyway. So you need to be careful with what you eat.
I'll post next when I have taken a course of antibiotics and let you know if that has any impact.
Shikz
Saturday 26 May 2012
Sunday 20 May 2012
Small Intestinal Bacterial Overgrowth (SIBO)
So I've been doing some research, because unfortunately to this date I'm still getting daily gastrointestinal problems, and I came across this article from medicinenet.com. It's about Small Intestinal Bacterial Overgrowth (SIBO) and how it can be closely related to Irritable Bowl Syndrome (IBS).
The article was written by Dr Jay W Marks, a board-certified internist and gastroenterologist. He graduated from Yale University School of Medicineand trained in internal medicine and gastroenterology at UCLA/Cedars-Sinai Medical Center in Los Angeles. For twenty years he was the Associate Director of the Division of Gastroenterology at Cedars-Sinai Medical Centerand an Associate Professor of Medicine, In Residence, at UCLA. At Cedars-Sinai he co-directed the Gastrointestinal Endoscopy Unit, taught physicians during their graduate and postgraduate training, and performed specialized, non-endoscopic, gastrointestinal testing. He carried out Public Health Service-sponsored (National Institutes of Health) clinical and basic research into mechanisms of the formation of gallstones and methods for the non-surgical treatment of gallstones. He is the author of 36 original research manuscripts and 24 book chapters. He is Co- Editor of the Webster's New World™ Medical Dictionary, Year 2000 First Edition. Dr. Marks presently directs an independent Gastrointestinal Diagnostic Unit where he continues to perform specialized tests for the diagnosis of gastrointestinal diseases.
I'll give a summary here of the article, but for the full version refer to http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/article.htm.
What is SIBO?
The entire gastrointestinal tract, including the small intestine, normally contains bacteria. The number of bacteria is greatest in the colon (at least 1,000,000,000 bacteria per milliliter (ml) of fluid) and much lower in the small intestine (less than 10,000 bacteria per ml of fluid). Moreover, the types of bacteria within the small intestine are different than the types of bacteria within the colon. Small intestinal bacterial overgrowth (SIBO) refers to a condition in which abnormally large numbers of bacteria (at least 100,000 bacteria per ml of fluid) are present in the small intestine and the types of bacteria in the small intestine resemble more the bacteria of the colon than the small intestine.
What Causes SIBO?
- excess gas
- abdominal bloating and distension
- diarrhoea
- abdominal pain
A small number of patients with SIBO have chronic constipation rather than diarrhoea. When the overgrowth is severe and prolonged, the bacteria may interfere with the digestion and/or absorption of food, and deficiencies of vitamins and minerals may develop. Weight loss also may occur. Patients with SIBO sometimes also report symptoms that are unrelated to the gastrointestinal tract, such as body aches or fatigue. The reason for these symptoms is unclear. The symptoms of SIBO tend to be chronic. A typical patient with SIBO can experience symptoms that fluctuate in intensity over months, years, or even decades before the diagnosis is made.
In patients with SIBO, large numbers of gas-producing bacteria (normally present in the colon) are present in the small intestine. The abundant bacteria in the small intestine compete with the small intestine the digestion of sugars and carbohydrates, but unlike the small intestine, the bacteria and produce large amounts of gas.
How does SIBO cause symptoms?
When bacteria digest food in the intestine, they produce gas. The gas can accumulate in the abdomen giving rise to abdominal bloating or distension. Distension can cause abdominal pain. The increased amounts of gas are passed as flatus (flatulence or farts). The bacteria also probably convert food including sugar and carbohydrate into substances that are irritating or toxic to the cells of the inner lining of the small intestine and colon. These irritating substances produce diarrhea (by causing secretion of water into the intestine). There is some evidence that the production of one type of gas by the bacteria-methane-causes constipation.
Relationship between SIBO and irritable bowel syndrome (IBS)
Irritable bowel syndrome (IBS) is a common gastrointestinal condition. Patients with IBS typically complain of abdominal pain associated with bloating, gaseousness, and alterations in their bowel habit (diarrhea, constipation, alternating diarrhea and constipation, or a sense of incomplete evacuation of stool). IBS is a chronic condition. Symptoms can be continuous or vary over months, years, or even decades. While irritable bowel syndrome is not life-threatening, symptoms of irritable bowel syndrome can have a major impact on a person's quality of life and can even be debilitating. For example, a patient with diarrhea after meals may avoid eating out. Patients who experience bloating and abdominal pain after meals may develop a fear of eating. In its extreme, they may even lose weight. Even flatulence can be socially limiting.
There is a striking similarity between the symptoms of IBS and SIBO. It has been theorized that SIBO may be responsible for the symptoms of at least some patients with irritable bowel syndrome. The estimates run as high as 50% of patients with irritable bowel syndrome. Support for the SIBO theory of IBS comes from the observation that many patients with IBS are found to have an abnormal hydrogen breath test, and some patients with irritable bowel syndrome have improvement of their symptoms after treatment with antibiotics, the primary treatment for SIBO. Furthermore, it has been reported that successful treatment of symptoms with antibiotics causes the hydrogen breath test to revert to normal, suggesting that bacteria indeed are causing the symptoms.
Treatment
The two most common treatments for SIBO in patients with IBS are oral antibiotics and probiotics. Probiotics are live bacteria that, when ingested by an individual, result in a health benefit. The most common probiotic bacteria are lactobacilli (also used in the production of yogurt) and bifidobacteria. Both of these bacteria are found in the intestine of normal individuals.
I hope this article helps some people out there. I am currently on VSL#3 myself, and it has reduced the flatulence a bit in my opinion, but I still have problems. I'm going to suggest taking a course of antibiotics to my specialist and see what he thinks. Personally, I don't see the harm in taking one course of antibiotics and then after take a course of probiotics. Reminds me of a computer. Cleaning out all of the bugs and then reintroducing the software.
Shikz
The article was written by Dr Jay W Marks, a board-certified internist and gastroenterologist. He graduated from Yale University School of Medicineand trained in internal medicine and gastroenterology at UCLA/Cedars-Sinai Medical Center in Los Angeles. For twenty years he was the Associate Director of the Division of Gastroenterology at Cedars-Sinai Medical Centerand an Associate Professor of Medicine, In Residence, at UCLA. At Cedars-Sinai he co-directed the Gastrointestinal Endoscopy Unit, taught physicians during their graduate and postgraduate training, and performed specialized, non-endoscopic, gastrointestinal testing. He carried out Public Health Service-sponsored (National Institutes of Health) clinical and basic research into mechanisms of the formation of gallstones and methods for the non-surgical treatment of gallstones. He is the author of 36 original research manuscripts and 24 book chapters. He is Co- Editor of the Webster's New World™ Medical Dictionary, Year 2000 First Edition. Dr. Marks presently directs an independent Gastrointestinal Diagnostic Unit where he continues to perform specialized tests for the diagnosis of gastrointestinal diseases.
I'll give a summary here of the article, but for the full version refer to http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/article.htm.
What is SIBO?
The entire gastrointestinal tract, including the small intestine, normally contains bacteria. The number of bacteria is greatest in the colon (at least 1,000,000,000 bacteria per milliliter (ml) of fluid) and much lower in the small intestine (less than 10,000 bacteria per ml of fluid). Moreover, the types of bacteria within the small intestine are different than the types of bacteria within the colon. Small intestinal bacterial overgrowth (SIBO) refers to a condition in which abnormally large numbers of bacteria (at least 100,000 bacteria per ml of fluid) are present in the small intestine and the types of bacteria in the small intestine resemble more the bacteria of the colon than the small intestine.
What Causes SIBO?
The gastrointestinal tract is a continuous muscular tube through which digesting food is transported on its way to the colon. The coordinated activity of the muscles of the stomach and small intestine propels the food from the stomach, through the small intestine, and into the colon. Even when there is no food in the small intestine, muscular activity sweeps through the small intestine from the stomach to the colon.
The muscular activity that sweeps through the small intestine is important for the digestion of food, but it also is important because it sweeps bacteria out of the small intestine and thereby limits the numbers of bacteria in the small intestine. Anything that interferes with the progression of normal muscular activity through the small intestine can result in SIBO. Simply stated, any condition that interferes with muscular activity in the small intestine allows the bacteria to stay longer and multiply in the small intestine. The lack of muscular activity also may allow bacteria to spread backwards from the colon and into the small intestine.
SIBO Symptoms- excess gas
- abdominal bloating and distension
- diarrhoea
- abdominal pain
A small number of patients with SIBO have chronic constipation rather than diarrhoea. When the overgrowth is severe and prolonged, the bacteria may interfere with the digestion and/or absorption of food, and deficiencies of vitamins and minerals may develop. Weight loss also may occur. Patients with SIBO sometimes also report symptoms that are unrelated to the gastrointestinal tract, such as body aches or fatigue. The reason for these symptoms is unclear. The symptoms of SIBO tend to be chronic. A typical patient with SIBO can experience symptoms that fluctuate in intensity over months, years, or even decades before the diagnosis is made.
In patients with SIBO, large numbers of gas-producing bacteria (normally present in the colon) are present in the small intestine. The abundant bacteria in the small intestine compete with the small intestine the digestion of sugars and carbohydrates, but unlike the small intestine, the bacteria and produce large amounts of gas.
How does SIBO cause symptoms?
When bacteria digest food in the intestine, they produce gas. The gas can accumulate in the abdomen giving rise to abdominal bloating or distension. Distension can cause abdominal pain. The increased amounts of gas are passed as flatus (flatulence or farts). The bacteria also probably convert food including sugar and carbohydrate into substances that are irritating or toxic to the cells of the inner lining of the small intestine and colon. These irritating substances produce diarrhea (by causing secretion of water into the intestine). There is some evidence that the production of one type of gas by the bacteria-methane-causes constipation.
Relationship between SIBO and irritable bowel syndrome (IBS)
Irritable bowel syndrome (IBS) is a common gastrointestinal condition. Patients with IBS typically complain of abdominal pain associated with bloating, gaseousness, and alterations in their bowel habit (diarrhea, constipation, alternating diarrhea and constipation, or a sense of incomplete evacuation of stool). IBS is a chronic condition. Symptoms can be continuous or vary over months, years, or even decades. While irritable bowel syndrome is not life-threatening, symptoms of irritable bowel syndrome can have a major impact on a person's quality of life and can even be debilitating. For example, a patient with diarrhea after meals may avoid eating out. Patients who experience bloating and abdominal pain after meals may develop a fear of eating. In its extreme, they may even lose weight. Even flatulence can be socially limiting.
There is a striking similarity between the symptoms of IBS and SIBO. It has been theorized that SIBO may be responsible for the symptoms of at least some patients with irritable bowel syndrome. The estimates run as high as 50% of patients with irritable bowel syndrome. Support for the SIBO theory of IBS comes from the observation that many patients with IBS are found to have an abnormal hydrogen breath test, and some patients with irritable bowel syndrome have improvement of their symptoms after treatment with antibiotics, the primary treatment for SIBO. Furthermore, it has been reported that successful treatment of symptoms with antibiotics causes the hydrogen breath test to revert to normal, suggesting that bacteria indeed are causing the symptoms.
Treatment
The two most common treatments for SIBO in patients with IBS are oral antibiotics and probiotics. Probiotics are live bacteria that, when ingested by an individual, result in a health benefit. The most common probiotic bacteria are lactobacilli (also used in the production of yogurt) and bifidobacteria. Both of these bacteria are found in the intestine of normal individuals.
The following are some treatment options:
- Neomycin orally for 10 days. Neomycin is not absorbed from the intestine and acts only within the intestines.
- Levofloxacin (Levaquin) or ciprofloxacin (Cipro) for 7 days.
- Metronidazole (Flagyl) for 7 days.
- Levofloxacin (Levaquin) combined with metronidazole (Flagyl) for 7 days.
- Rifaximin (Xifaxan) for 7 days. Rifaximin like neomycin is not absorbed from the intestine, and, therefore, acts only within the intestine. Because very little rifaximin is absorbed into the body, it has few important side effects. Higher than normal doses of rifaximin (1200 mg/day for 7 days) were superior to the standard lower doses (800 or 400 mg/day) in normalizing the hydrogen breath test in patients with SIBO and IBS. However, it is not yet known whether the larger dose is any better at suppressing symptoms.
- Commercially available probiotics such as VSL#3 or Flora-Q, which are mixtures of several different bacterial species, have been used for treating SIBO and IBS, but their effectiveness is not known. Bifidobacterium infantis 35624 is the only probiotic that has been demonstrated to be effective in treating patients with IBS.
I hope this article helps some people out there. I am currently on VSL#3 myself, and it has reduced the flatulence a bit in my opinion, but I still have problems. I'm going to suggest taking a course of antibiotics to my specialist and see what he thinks. Personally, I don't see the harm in taking one course of antibiotics and then after take a course of probiotics. Reminds me of a computer. Cleaning out all of the bugs and then reintroducing the software.
Shikz
The Low FODMAP Diet
Future Update 1/3/2013
So I did follow the FODMAP diet quite religiously for 3-4 months with not much improvement in symptoms. I still experience daily symptoms. What I have realised that what's more important than FODMAP is to eat very light and healthy small meals that are easy to digest, and light easy to digest snacks in-between. Avoiding foods like the following should help:
Red meats, spicy, oily, onion and garlic rich, processed foods, very sugary e.g. chocolate, etc.
Eating half an apple or a few cherries, which are regarded as problem foods, should not cause problems, just don't over eat these items. In fact, it's a good idea not to over eat any item of food. Spread light easy to digests foods throughout the day.
Note that my symptoms are unrelated to intolerances, it's more based on hypersensitivity and a dysfunctional gut. You may have intolerances, so completely avoiding certain foods may help. Every individual case is different.
Posted 20/5/2012
That's right. Still discussing Irritable Bowl Syndrome (IBS). But for those in need of help I thought that it might be useful to provide more detailed information about the FODMAP diet.
History
Dr Sue Shepherd developed the low FODMAP diet in 2001. She has proven, through her pioneering PhD research, that limiting dietary FODMAPs is an effective treatment for people with symptoms of IBS. The low FODMAP diet has been published in international medical journals and is now accepted and recommended as one of the most effective dietary therapies for IBS. For more information refer to www.shephardworks.com.au
The Low FODMAP Diet
FODMAPs are found in foods we eat. FODMAPs is an acronym referring to Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. These are complex names for a collection of molecules found in food, that can be poorly absorbed by some people. When the molecules are poorly absorbed in the small intestine, these molecules then continue along their journey along the digestive tract, arriving at the large intestine, where they act as a food source to the bacteria that live there normally. The bacteria then digest/ferment these FODMAPs and can cause symptoms of IBS. Symptoms include abdominal bloating and distension, excess wind (flatulence), abdominal pain, nausea, diarrhoea, constipation and other symptoms.
What are the FODMAPs?
Fermentable Oligosaccharides (e.g. Fructans and GOS)
Disaccharides (e.g. Lactose)
Monosaccharides (e.g. excess Fructose)
Polyols (e.g. Sorbitol, Mannitol, Maltitol, Xylitol and Isomalt)
If you have fructose malabsorption there is no need to avoid fructose completely. When glucose is balanced with fructose moderate amounts of fructose can be absorbed without symptoms, for example, kiwi fruit has 4 units of fructose per 100g and 4 units of glucose per 100g, which means that there will be zero excess free fructose. In other words, you can enjoy fruits that contain fructose, however, it is just not recommended to have large servings at a time.
Foods with Excess Fructose, Fructans and Polyols
PROBLEM FRUITS
Apple, cherries, mango, nashi fruit, pear, watermelon, natural juice in tin fruit, custard apple, figs, nectarine, peach, persimmon, watermelon, blackberries, nectarine, plum, prune, clingstone peaches
ALTERNATIVE FRUITS (in small amounts)
Banana, blueberries, boysenberry, canteloupe, carambola, cranberry, durian, grapes, grapefruit, honeydew melon, kiwi, lemon, lime, mandarin, orange, passionfruit, paw paw, pineapple, raspberry, rhubarb, strawberry, tangelo
Dried fruits - Banana chips, currants, dates, sultanas, raisins
Avocado, lychee, longon
PROBLEM VEGETABLES
Asparagus, artichokes, sugar snap peas, asparagus, chicory, dandelion leaves, garlic, legumes and lentils, leek, onion, shallot, spring onion (white part), cauliflower, mushrooms
ALTERNATIVE VEGETABLES
Alfalfa, bamboo shoots, bean shoot, beans (green), bok choy, capsicum, carrot, chives, choy sum, cucumber, endive, eggplant, ginger, lettuce, marrow, olives, parsnip, potato, pumpkin, silver beet, spring onion (green part), spinach, squash, swede, taro, tomato, turnip, yam, zucchini
In small amounts - Beetroot, butternut pumpkin, broccoli, brussel sprouts, cabbage, celery, corn, fennel, okra, peas, snow peas, sweet potato
Note: It has been observed that onion is one of the greatest contributors to IBS symptoms, so try to strictly avoid onion for at least three months. Also, onion is not an "allergen" so it does not have to be declared on the ingredients list if it is a component of other ingredients. It may also be found in the following:
- Chicken salt
- Vegetable salt
- Vegetable powder
- Dehydrated vegetables
- Stocks
- Gravies
- Soups
- Marinades
- Sauces
Other Foods Containing Fructose and FODMAPs
Honey
Alternatives - Golden syrup, treacle, pur/natural maple syrup, molasses, rice syrup, peanut butter, nutella, jam and marmalade
Corn Syrups
Alternatives - Table sugar, caster sugar, icing sugar, brown sugar, raw sugar
Pistachio nuts
Alternatives - Other nuts and seeds
Inulin (artificial fibre)
Alternatives - Chia seed, linseed, sunflower, almond meal, psyllium, oat bran, rice bran, nuts and seeds
Artificial sweeteners (e.g. gums, mints, lollies, dairy desserts)
Alternatives - Equal, Nutrasweet, Sucralose, Aspartame, Saccharine, Stevia, Minties, Tic Tacs, Mentos
Wheat and Rye Restriction
Wheat, rye and barley are only problem ingredients when consumed in large amounts (e.g. breads, cereals, pasta).
ALTERNATIVES TO WHEAT BASED FOODS
Rice, corn, potato, oats, topiaca, amaranth, quinoa, millet, sorghum, buckwheat (soba), arrowroot, sago
Anyway, I hope that above provided some useful information for some.
Shikz
So I did follow the FODMAP diet quite religiously for 3-4 months with not much improvement in symptoms. I still experience daily symptoms. What I have realised that what's more important than FODMAP is to eat very light and healthy small meals that are easy to digest, and light easy to digest snacks in-between. Avoiding foods like the following should help:
Red meats, spicy, oily, onion and garlic rich, processed foods, very sugary e.g. chocolate, etc.
Eating half an apple or a few cherries, which are regarded as problem foods, should not cause problems, just don't over eat these items. In fact, it's a good idea not to over eat any item of food. Spread light easy to digests foods throughout the day.
Note that my symptoms are unrelated to intolerances, it's more based on hypersensitivity and a dysfunctional gut. You may have intolerances, so completely avoiding certain foods may help. Every individual case is different.
Posted 20/5/2012
That's right. Still discussing Irritable Bowl Syndrome (IBS). But for those in need of help I thought that it might be useful to provide more detailed information about the FODMAP diet.
History
Dr Sue Shepherd developed the low FODMAP diet in 2001. She has proven, through her pioneering PhD research, that limiting dietary FODMAPs is an effective treatment for people with symptoms of IBS. The low FODMAP diet has been published in international medical journals and is now accepted and recommended as one of the most effective dietary therapies for IBS. For more information refer to www.shephardworks.com.au
The Low FODMAP Diet
FODMAPs are found in foods we eat. FODMAPs is an acronym referring to Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. These are complex names for a collection of molecules found in food, that can be poorly absorbed by some people. When the molecules are poorly absorbed in the small intestine, these molecules then continue along their journey along the digestive tract, arriving at the large intestine, where they act as a food source to the bacteria that live there normally. The bacteria then digest/ferment these FODMAPs and can cause symptoms of IBS. Symptoms include abdominal bloating and distension, excess wind (flatulence), abdominal pain, nausea, diarrhoea, constipation and other symptoms.
What are the FODMAPs?
Fermentable Oligosaccharides (e.g. Fructans and GOS)
Disaccharides (e.g. Lactose)
Monosaccharides (e.g. excess Fructose)
Polyols (e.g. Sorbitol, Mannitol, Maltitol, Xylitol and Isomalt)
If you have fructose malabsorption there is no need to avoid fructose completely. When glucose is balanced with fructose moderate amounts of fructose can be absorbed without symptoms, for example, kiwi fruit has 4 units of fructose per 100g and 4 units of glucose per 100g, which means that there will be zero excess free fructose. In other words, you can enjoy fruits that contain fructose, however, it is just not recommended to have large servings at a time.
Foods with Excess Fructose, Fructans and Polyols
PROBLEM FRUITS
Apple, cherries, mango, nashi fruit, pear, watermelon, natural juice in tin fruit, custard apple, figs, nectarine, peach, persimmon, watermelon, blackberries, nectarine, plum, prune, clingstone peaches
ALTERNATIVE FRUITS (in small amounts)
Banana, blueberries, boysenberry, canteloupe, carambola, cranberry, durian, grapes, grapefruit, honeydew melon, kiwi, lemon, lime, mandarin, orange, passionfruit, paw paw, pineapple, raspberry, rhubarb, strawberry, tangelo
Dried fruits - Banana chips, currants, dates, sultanas, raisins
Avocado, lychee, longon
PROBLEM VEGETABLES
Asparagus, artichokes, sugar snap peas, asparagus, chicory, dandelion leaves, garlic, legumes and lentils, leek, onion, shallot, spring onion (white part), cauliflower, mushrooms
ALTERNATIVE VEGETABLES
Alfalfa, bamboo shoots, bean shoot, beans (green), bok choy, capsicum, carrot, chives, choy sum, cucumber, endive, eggplant, ginger, lettuce, marrow, olives, parsnip, potato, pumpkin, silver beet, spring onion (green part), spinach, squash, swede, taro, tomato, turnip, yam, zucchini
In small amounts - Beetroot, butternut pumpkin, broccoli, brussel sprouts, cabbage, celery, corn, fennel, okra, peas, snow peas, sweet potato
Note: It has been observed that onion is one of the greatest contributors to IBS symptoms, so try to strictly avoid onion for at least three months. Also, onion is not an "allergen" so it does not have to be declared on the ingredients list if it is a component of other ingredients. It may also be found in the following:
- Chicken salt
- Vegetable salt
- Vegetable powder
- Dehydrated vegetables
- Stocks
- Gravies
- Soups
- Marinades
- Sauces
Other Foods Containing Fructose and FODMAPs
Honey
Alternatives - Golden syrup, treacle, pur/natural maple syrup, molasses, rice syrup, peanut butter, nutella, jam and marmalade
Corn Syrups
Alternatives - Table sugar, caster sugar, icing sugar, brown sugar, raw sugar
Pistachio nuts
Alternatives - Other nuts and seeds
Inulin (artificial fibre)
Alternatives - Chia seed, linseed, sunflower, almond meal, psyllium, oat bran, rice bran, nuts and seeds
Artificial sweeteners (e.g. gums, mints, lollies, dairy desserts)
Alternatives - Equal, Nutrasweet, Sucralose, Aspartame, Saccharine, Stevia, Minties, Tic Tacs, Mentos
Wheat and Rye Restriction
Wheat, rye and barley are only problem ingredients when consumed in large amounts (e.g. breads, cereals, pasta).
ALTERNATIVES TO WHEAT BASED FOODS
Rice, corn, potato, oats, topiaca, amaranth, quinoa, millet, sorghum, buckwheat (soba), arrowroot, sago
Anyway, I hope that above provided some useful information for some.
Shikz
Thursday 10 May 2012
Severe PI-IBS: On The Mend
Hello,
What I'm about to write has been on the forefront of my mind for one and a half years. What was meant to be an exciting holiday turned into a horrible story that dramatically affected my life.
By the way, if you are an IBS sufferer and do not want the detailed version of the story just jump to the section titled 'Path to Recovery'. The section titled 'Doctors, doctors and more doctors' also has some good information.
Where it all Began
It all started when the family received an exciting invitation to my cousins wedding celebrations in India. For those who do not know, Indian weddings are pretty massive, especially when it concerns my cousins because they probably spent a couple of million on it. To give you an idea some of the functions had famous celebrities perform and some of the functions involved four photographers and four cinematographers at one time. I felt like paparazzi were following me and I'm not even famous. Quite an experience.
Alas, I am not here to discuss my cousin's wedding. Instead I'm here to discuss where it all went wrong. And before I continue, there is a reason for writing this. I am hoping that it may help others that received the same problem and are at a loss as to what to do.
The night before, I excitedly packed my bags. I'll admit, I was dreading the flight a bit. Not the biggest fan of long flights. I can't sleep on planes, so that never helps.
We arrived in Delhi. The sun was shining through the thick layers of smog, there were hundreds and thousands of people scuffling all over the place, and the smells overwhelmed the senses. It was a great day. We greeted family members with large embraces and settled for a nice long sleep.
The next day, another lovely shining thick smog day filled with roaming dogs and cows, three wheeler bicycles and no traffic rules. If there was a place to drag race, it would be India. In fact, I reckon the cops would join in with the fun.
By evening, however, something wasn't quite right. I started to feel a little queasy. I said to myself, a nice bath would fix me right up. Unfortunately, that wasn't the case. I still felt sick, and growing more ill by every minute.
Then it happened... the vomiting and diarrhoea began. If anyone is fond of travelling to developing countries I'm sure you would understand the horror. Now usually when I get sick in India I may vomit perhaps one or two times and then the healing process begins. I was not so fortunate. Eight hours later I was still vomiting, excreting green diarrhoea, urine filled with blood, my pulse slowed to 50, my temperature increased to 103, my hands and feet became numb, I could barely speak or move, I had severe gastroenteritis (inflammation of the bowl), and my vision started to become blurry. I thought to myself, 'I really didn't think I'd be going this way'.
Finally my parents rushed me to a nursing home. In India nursing homes are smaller versions of hospitals. Much smaller versions. With a couple of doctors and nurses. They immediately put me on a drip and started with the antibiotics. This did make me feel better. After taking blood samples and a stool test they diagnosed that I had amoebiasis. Nasty parasites from India's water supply somehow entered into my body. I thought I was being careful by drinking bottled water, but I guess I just got unlucky. Who knows where I got the parasite from. I stayed in the nursing home for half a week. My arms became so swollen from all of the medication they continued to inject into. The doctors there wanted me to stay longer, however, I was able to swallow medication and eat food. So we are assuming that they wanted to keep me there to get more money. My dad was able to persuade the doctor to let me go so I can attend my cousin's wedding functions. So for the next month, straight out of hospital, I was going to wedding functions that lasted until four in the morning and taking 8 different types of medication a day. I know, not wise, but I did travel 14 hours roughly by plan to India for the sole purpose of going to my cousin's wedding.
The month was over, the wedding functions ended and I headed back home feeling relieved that I somehow managed to survive and going back to a safe, non-lethal environment where I could breathe in the air without any hesitation.
The Symptoms
You would think that everything would be hunky dory now. Boy were you wrong. When I arrived back to my home town I pretty much went straight back into work. The work I do can be pretty strenuous at times. Lots of the time it would be meeting after meeting after meeting. At times during the day or evening I would have a little abdominal pain. I thought to myself, no worries, I'll just take some yakult and be on my merry way. It wasn't getting better.
Then the nausea started. Every morning I would wake up with bad nausea that would sometimes last all day, and if I was lucky last until lunch time. The nausea was so bad that it started to get difficult to eat and concentrate at work, attend client meetings and produce quality work for my peers and bosses. Something definitely wasn't right. So I went to see a GP and he prescribed Nexium (an acid producing prohibitor). I started on a high dose, 40mg. It did seem to help with the nausea, but only sometimes. So really, it wasn't really helping. One month later and I'm still struggling. I decided I needed to take some time off work. Like three months off. Got to say, I'm very lucky that my boss was very happy to give me the time off. A seriously nice guy. I was thinking that perhaps the time off would help me to get back onto my feet and rid of this thing once and for all.
It didn't.
That's when my GP decided that Nexium wasn't really helping and that I should see a gastroenterologist. Seriously, by the end of all of this, I reckon I have become quite the expert on the subject. Anyway, back to the story. First of all, gastroenterologists are pretty busy people. It's impossible to see them on short notice. From memory I think I was able to make an appointment in a months time. Maybe longer. When I saw the specialist he suggested that I get a gastroscopy examination. I agreed. Unfortunately sometimes getting these sorts of tests or surgeries performed can take some time. I ended up waiting for roughly two months until I had the scope test. And yes, during that time I had to deal with the symptoms of nausea and severe abdominal pain and discomfort. Finally the test was performed and they diagnosed Gastroesophageal Reflux Disorder (GORD), or otherwise known as Esophagitis (inflammation of the oesophagus). So I was prescribed Somac 40mg (an acid producing prohibitor, just a different brand to Nexium). The specialist told me to take it for a while and stop taking it when I started to feel better.
Roughly a month later it was time for me to go back to work. Unfortunately I was not yet better at this time. I started the week with heavy nausea and abdominal pain, whilst attending meetings and completing work. It was not fun. I can assure you. I was desperate. I went back to the specialist and he suggested to take more Somac. By the way, in addition to Somac and Nexium the GP and specialist prescribed different nausea tablets. Stemetil, Maxolon and Domperidone. None of which helped in the slightest. So I tried to take more Somac.
A few months later and I'm still struggling with nausea and abdominal pain and discomfort. Will this never end. Sometimes the pain got so bad that I had to rush to the disabled toilets at work, lie down on the ground and crunch up until the pain went away. Then I would wipe away the tears, attempt to stand up tall, and go back to my computer to continue working. My friend then decided that I should see her doctor who specialises in Traditional Chinese Medicine, herbal treatment and acupuncture. She even booked the appointments for me. When the first appointment came I thought that it would just be a consultation. Let's just say that I was pleasantly surprised. Upon first examination he told me to lie on the bed and straight away stuck needles in me, and oh my was that painful. I had no idea what was going on. Then he said "I'll be back" and left the room. I had no idea where he went or how long he would take to come back. 10 minutes later under excruciating pain and still no-one returned. 20 minutes later and no-one returned. I even attempted to call out for someone but no-one heard me. To my relief my friend arrived. I asked where the doctor went and she laughed "he'll be back, you need to try to relax". What no one mentioned to me before was that the longer the needle stays in the better it is and the reason for why it was so painful was because of my condition. The pain is meant to die down when the condition improves. And so the treatment began. I was meant to take some not to tasty herbs three times a day for three months and see him weekly for three months. After the first month I did notice an improvement to my condition. Finally, something that's working. I even stopped taking Somac. Don't exactly want to become dependent on medication. Two months later a little better. Three months later, still have problems, but semi-tolerable. Four months later, still have problems, nausea, bad pain where I needed to lie down, but still living day to day and working. Five months later, I started to give up. This wasn't going anywhere and it was super expensive.
The Next Year
This is where it really went wrong. The nausea did die down a bit, but then it came back full throttle. I guess my body just finally gave up on me and could no longer cope. It was a hurdle just to get out of bed every morning. The acupuncture and herbal medicine were no longer working. On top of everything I was required to travel to the Gold Coast, Tasmania and Bendigo for work reasons, but I just couldn't. So I had to pull out of my work commitments. That can never look good. I decided maybe working part time might help, but by then it was too late. I was losing even more weight, I felt weak, fatigued and thought I was about to pass out at any time. I had to take dramatic action. I could no longer function and had to take more time off work. I came to the realisation that I could not function and perform at work not until I resolved my condition. Once again my boss was super nice and granted for me to take a year off. Phew. One less thing to stress about.
Doctors, Doctors and More Doctors
Boy, I can't tell you how many times I went to see doctors. I believe I would see some sort of doctor about three times a week. I went to a different GP because he was closer in proximity to my home and immediately he referred me to a different gastroenterologist. Luckily my boyfriend's mum is also a GP and wanted to monitor my condition so she stayed in contact with the gastroenterologist. The specialist decided that I should have a colonoscopy performed, but before that get a fructose and lactose intolerance check and to see a dietitian. Whilst this was happening it was suggested that I go see a psychologist to assist with relaxing my nerves in hopes that the abdominal pain and nausea would reduce. In addition, another GP got involved, my boyfriend's mum's colleague, and assisted with the monitoring of my condition. I also had a number of blood tests, ultra sounds, x-rays and other tests. Wow, my health team was growing by the minute. Got to say, I can't complain. The fact that I had so many people trying to help me really did lift my spirits. I didn't have to pay too much either.
For those in Australia, if you are low income earning and need to see a psychologist, the government have provided the ATAPS program. This means they will pay for the consultations, and you will be roughly $20 out of pocket. To apply for this you need to get your doctor to fill out a form and provide it to the psychologist.
For those in Australia, if you need to see a dietitian you can get your doctor to fill out a health care plan, and medicare will pay for the first six consultations with the dietitian.
Some specialists also allow for bulk billing (medicare benefits). Your doctor will need to assist you with this.
Not sure about other countries. I can only assume that private insurance is the way to go for some.
After a couple of months of seeing doctor after doctor I found out that I did not have a lactose intolerance and only a small fructose intolerance, no blood abnormalities or other issues. The specialist requested that I see him after these tests so a colonoscopy could be performed. However, when I attempted to call him I found out that he went on holiday and decided not to tell me. So here I am, still suffering heavily for two months, seeing doctor after doctor, and the specialist goes on holiday. Let's just say that I was not very impressed and neither was my boyfriend's mum. She wanted me to see another gastroenterologist that she greatly admires and trusts. Surprisingly I didn't need to wait for two months to see this specialist. I only waited three days. All I can say is thank you so much boyfriend's mum! Yes, that's right, I am not using names.
Path to Recovery
So I see the third and hopefully final gastroenterologist and immediately when I see him I felt as though I was in safe hands. He seemed to know exactly what I was going through. It was as if he had seen this a million times. He diagnosed me to have Post-Infection Irritable Bowl Syndrome (PI-IBS). Now, other doctors did mention that I may have IBS, however, they did not provide or prescribe anything for relief. Not only did this gastroenterologist diagnose my condition, but he also explained the symptoms, decided that a colonoscopy would not find anything and only create stress for my body, and provided an action plan for my recovery. He also referred me to a dietitian that specialises in IBS.
So now it has been roughly three weeks since I saw the gastroenterologist and this is the action plan.
- Take one vitamin D in the morning and one in the evening. Vitamin D naturally reduces inflammation. Inflammation in the gut can cause a lot of pain.
- Take ENDEP every night before bed. ENDEP 10mg is a mild prescription anti-depressant. The idea is to calm down the nerves around the gut to reduce abdominal pain.
- Take VSL 3 every day with Activia yogurt. VSL 3 is a strong probiotic with 450 billion good bacteria. The idea here is to re-balance the flora in the gut.
- With the assistance of the dietitian follow the FODMAP diet. FODMAP stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. Apparently this diet has been proven to assist those with IBS. It basically means reduce eating foods with Fructans (e.g. legumes, garlic and onions), Lactose (e.g. milk) and Fructose (e.g. apples and pears). Other foods containing FODMAPS include honey, wheat, corn syrup, wheat, artificial sweeteners and inulin. The idea is to follow this diet for two to three months and then reintroduce foods to see if it triggers abdominal upset.
So here I am, three weeks on this action plan. I started the low FODMAP diet just a week ago. So far the nausea has seemed to nearly disappear. Before this action plan when I had my period the nausea would go up ten fold. This time when I got my period I didn't get any nausea. I used to have abdominal discomfort and pain all the time, and now I seem to have pain just in the evenings. I also quite often would have very sharp pain. It was so bad that I couldn't even move and would start to cry. I do not seem to be getting such bad pain anymore.
Having said the above I am also trying to take it easy. I'm not going out too much. Mainly staying at home playing the piano to help me to relax. I reckon this is helping too. A nice chilled hobby to distract my mind. I'm also trying to do a little exercise daily. This just consists of stretching, star jumps, reps and squats. When I believe I'm up for it I'll go on the treadmill. Not sure if I'm confident yet because I'm still getting pain everyday. I'm also still seeing the psychologist who is performing hypnotherapy on me weekly.
Another little secret, I'm taking a teaspoon of grinded carom seeds with a pinch of rock salt with water every day after lunch. Carom seeds naturally assist with digestion and reduces gas. Feel free to google. I also like to take it before going out somewhere.
I'm also drinking Sustegen everyday to try to keep my strength up and lots of water. It doesn't hurt to have ginger tea from time to time either. Ginger is a natural remedy for nausea and assists with digestion.
So overall, I guess so far so good. But still a while to go. Will keep you informed of my progress.
The Other Stuff
You would be wrong to think that after one and a half years of having abdominal pain and discomfort and nausea one would be all happy and chipper. I have had my lows, and I mean extreme lows. So if you have a friend with IBS, just keep in mind that it isn't as easy as you think. Best thing you can do is just keep trying to distract them from the condition and reassure them that they'll get better, even if you have to tell them every day.
Anyway, I really hope that some of the information provided helps others out there, and if you don't have any IBS problems then I hope at least this was a good read.
xoxo Shikz
What I'm about to write has been on the forefront of my mind for one and a half years. What was meant to be an exciting holiday turned into a horrible story that dramatically affected my life.
By the way, if you are an IBS sufferer and do not want the detailed version of the story just jump to the section titled 'Path to Recovery'. The section titled 'Doctors, doctors and more doctors' also has some good information.
Where it all Began
It all started when the family received an exciting invitation to my cousins wedding celebrations in India. For those who do not know, Indian weddings are pretty massive, especially when it concerns my cousins because they probably spent a couple of million on it. To give you an idea some of the functions had famous celebrities perform and some of the functions involved four photographers and four cinematographers at one time. I felt like paparazzi were following me and I'm not even famous. Quite an experience.
Alas, I am not here to discuss my cousin's wedding. Instead I'm here to discuss where it all went wrong. And before I continue, there is a reason for writing this. I am hoping that it may help others that received the same problem and are at a loss as to what to do.
The night before, I excitedly packed my bags. I'll admit, I was dreading the flight a bit. Not the biggest fan of long flights. I can't sleep on planes, so that never helps.
We arrived in Delhi. The sun was shining through the thick layers of smog, there were hundreds and thousands of people scuffling all over the place, and the smells overwhelmed the senses. It was a great day. We greeted family members with large embraces and settled for a nice long sleep.
The next day, another lovely shining thick smog day filled with roaming dogs and cows, three wheeler bicycles and no traffic rules. If there was a place to drag race, it would be India. In fact, I reckon the cops would join in with the fun.
By evening, however, something wasn't quite right. I started to feel a little queasy. I said to myself, a nice bath would fix me right up. Unfortunately, that wasn't the case. I still felt sick, and growing more ill by every minute.
Then it happened... the vomiting and diarrhoea began. If anyone is fond of travelling to developing countries I'm sure you would understand the horror. Now usually when I get sick in India I may vomit perhaps one or two times and then the healing process begins. I was not so fortunate. Eight hours later I was still vomiting, excreting green diarrhoea, urine filled with blood, my pulse slowed to 50, my temperature increased to 103, my hands and feet became numb, I could barely speak or move, I had severe gastroenteritis (inflammation of the bowl), and my vision started to become blurry. I thought to myself, 'I really didn't think I'd be going this way'.
Finally my parents rushed me to a nursing home. In India nursing homes are smaller versions of hospitals. Much smaller versions. With a couple of doctors and nurses. They immediately put me on a drip and started with the antibiotics. This did make me feel better. After taking blood samples and a stool test they diagnosed that I had amoebiasis. Nasty parasites from India's water supply somehow entered into my body. I thought I was being careful by drinking bottled water, but I guess I just got unlucky. Who knows where I got the parasite from. I stayed in the nursing home for half a week. My arms became so swollen from all of the medication they continued to inject into. The doctors there wanted me to stay longer, however, I was able to swallow medication and eat food. So we are assuming that they wanted to keep me there to get more money. My dad was able to persuade the doctor to let me go so I can attend my cousin's wedding functions. So for the next month, straight out of hospital, I was going to wedding functions that lasted until four in the morning and taking 8 different types of medication a day. I know, not wise, but I did travel 14 hours roughly by plan to India for the sole purpose of going to my cousin's wedding.
The month was over, the wedding functions ended and I headed back home feeling relieved that I somehow managed to survive and going back to a safe, non-lethal environment where I could breathe in the air without any hesitation.
The Symptoms
You would think that everything would be hunky dory now. Boy were you wrong. When I arrived back to my home town I pretty much went straight back into work. The work I do can be pretty strenuous at times. Lots of the time it would be meeting after meeting after meeting. At times during the day or evening I would have a little abdominal pain. I thought to myself, no worries, I'll just take some yakult and be on my merry way. It wasn't getting better.
Then the nausea started. Every morning I would wake up with bad nausea that would sometimes last all day, and if I was lucky last until lunch time. The nausea was so bad that it started to get difficult to eat and concentrate at work, attend client meetings and produce quality work for my peers and bosses. Something definitely wasn't right. So I went to see a GP and he prescribed Nexium (an acid producing prohibitor). I started on a high dose, 40mg. It did seem to help with the nausea, but only sometimes. So really, it wasn't really helping. One month later and I'm still struggling. I decided I needed to take some time off work. Like three months off. Got to say, I'm very lucky that my boss was very happy to give me the time off. A seriously nice guy. I was thinking that perhaps the time off would help me to get back onto my feet and rid of this thing once and for all.
It didn't.
That's when my GP decided that Nexium wasn't really helping and that I should see a gastroenterologist. Seriously, by the end of all of this, I reckon I have become quite the expert on the subject. Anyway, back to the story. First of all, gastroenterologists are pretty busy people. It's impossible to see them on short notice. From memory I think I was able to make an appointment in a months time. Maybe longer. When I saw the specialist he suggested that I get a gastroscopy examination. I agreed. Unfortunately sometimes getting these sorts of tests or surgeries performed can take some time. I ended up waiting for roughly two months until I had the scope test. And yes, during that time I had to deal with the symptoms of nausea and severe abdominal pain and discomfort. Finally the test was performed and they diagnosed Gastroesophageal Reflux Disorder (GORD), or otherwise known as Esophagitis (inflammation of the oesophagus). So I was prescribed Somac 40mg (an acid producing prohibitor, just a different brand to Nexium). The specialist told me to take it for a while and stop taking it when I started to feel better.
Roughly a month later it was time for me to go back to work. Unfortunately I was not yet better at this time. I started the week with heavy nausea and abdominal pain, whilst attending meetings and completing work. It was not fun. I can assure you. I was desperate. I went back to the specialist and he suggested to take more Somac. By the way, in addition to Somac and Nexium the GP and specialist prescribed different nausea tablets. Stemetil, Maxolon and Domperidone. None of which helped in the slightest. So I tried to take more Somac.
A few months later and I'm still struggling with nausea and abdominal pain and discomfort. Will this never end. Sometimes the pain got so bad that I had to rush to the disabled toilets at work, lie down on the ground and crunch up until the pain went away. Then I would wipe away the tears, attempt to stand up tall, and go back to my computer to continue working. My friend then decided that I should see her doctor who specialises in Traditional Chinese Medicine, herbal treatment and acupuncture. She even booked the appointments for me. When the first appointment came I thought that it would just be a consultation. Let's just say that I was pleasantly surprised. Upon first examination he told me to lie on the bed and straight away stuck needles in me, and oh my was that painful. I had no idea what was going on. Then he said "I'll be back" and left the room. I had no idea where he went or how long he would take to come back. 10 minutes later under excruciating pain and still no-one returned. 20 minutes later and no-one returned. I even attempted to call out for someone but no-one heard me. To my relief my friend arrived. I asked where the doctor went and she laughed "he'll be back, you need to try to relax". What no one mentioned to me before was that the longer the needle stays in the better it is and the reason for why it was so painful was because of my condition. The pain is meant to die down when the condition improves. And so the treatment began. I was meant to take some not to tasty herbs three times a day for three months and see him weekly for three months. After the first month I did notice an improvement to my condition. Finally, something that's working. I even stopped taking Somac. Don't exactly want to become dependent on medication. Two months later a little better. Three months later, still have problems, but semi-tolerable. Four months later, still have problems, nausea, bad pain where I needed to lie down, but still living day to day and working. Five months later, I started to give up. This wasn't going anywhere and it was super expensive.
The Next Year
This is where it really went wrong. The nausea did die down a bit, but then it came back full throttle. I guess my body just finally gave up on me and could no longer cope. It was a hurdle just to get out of bed every morning. The acupuncture and herbal medicine were no longer working. On top of everything I was required to travel to the Gold Coast, Tasmania and Bendigo for work reasons, but I just couldn't. So I had to pull out of my work commitments. That can never look good. I decided maybe working part time might help, but by then it was too late. I was losing even more weight, I felt weak, fatigued and thought I was about to pass out at any time. I had to take dramatic action. I could no longer function and had to take more time off work. I came to the realisation that I could not function and perform at work not until I resolved my condition. Once again my boss was super nice and granted for me to take a year off. Phew. One less thing to stress about.
Doctors, Doctors and More Doctors
Boy, I can't tell you how many times I went to see doctors. I believe I would see some sort of doctor about three times a week. I went to a different GP because he was closer in proximity to my home and immediately he referred me to a different gastroenterologist. Luckily my boyfriend's mum is also a GP and wanted to monitor my condition so she stayed in contact with the gastroenterologist. The specialist decided that I should have a colonoscopy performed, but before that get a fructose and lactose intolerance check and to see a dietitian. Whilst this was happening it was suggested that I go see a psychologist to assist with relaxing my nerves in hopes that the abdominal pain and nausea would reduce. In addition, another GP got involved, my boyfriend's mum's colleague, and assisted with the monitoring of my condition. I also had a number of blood tests, ultra sounds, x-rays and other tests. Wow, my health team was growing by the minute. Got to say, I can't complain. The fact that I had so many people trying to help me really did lift my spirits. I didn't have to pay too much either.
For those in Australia, if you are low income earning and need to see a psychologist, the government have provided the ATAPS program. This means they will pay for the consultations, and you will be roughly $20 out of pocket. To apply for this you need to get your doctor to fill out a form and provide it to the psychologist.
For those in Australia, if you need to see a dietitian you can get your doctor to fill out a health care plan, and medicare will pay for the first six consultations with the dietitian.
Some specialists also allow for bulk billing (medicare benefits). Your doctor will need to assist you with this.
Not sure about other countries. I can only assume that private insurance is the way to go for some.
After a couple of months of seeing doctor after doctor I found out that I did not have a lactose intolerance and only a small fructose intolerance, no blood abnormalities or other issues. The specialist requested that I see him after these tests so a colonoscopy could be performed. However, when I attempted to call him I found out that he went on holiday and decided not to tell me. So here I am, still suffering heavily for two months, seeing doctor after doctor, and the specialist goes on holiday. Let's just say that I was not very impressed and neither was my boyfriend's mum. She wanted me to see another gastroenterologist that she greatly admires and trusts. Surprisingly I didn't need to wait for two months to see this specialist. I only waited three days. All I can say is thank you so much boyfriend's mum! Yes, that's right, I am not using names.
Path to Recovery
So I see the third and hopefully final gastroenterologist and immediately when I see him I felt as though I was in safe hands. He seemed to know exactly what I was going through. It was as if he had seen this a million times. He diagnosed me to have Post-Infection Irritable Bowl Syndrome (PI-IBS). Now, other doctors did mention that I may have IBS, however, they did not provide or prescribe anything for relief. Not only did this gastroenterologist diagnose my condition, but he also explained the symptoms, decided that a colonoscopy would not find anything and only create stress for my body, and provided an action plan for my recovery. He also referred me to a dietitian that specialises in IBS.
So now it has been roughly three weeks since I saw the gastroenterologist and this is the action plan.
- Take one vitamin D in the morning and one in the evening. Vitamin D naturally reduces inflammation. Inflammation in the gut can cause a lot of pain.
- Take ENDEP every night before bed. ENDEP 10mg is a mild prescription anti-depressant. The idea is to calm down the nerves around the gut to reduce abdominal pain.
- Take VSL 3 every day with Activia yogurt. VSL 3 is a strong probiotic with 450 billion good bacteria. The idea here is to re-balance the flora in the gut.
- With the assistance of the dietitian follow the FODMAP diet. FODMAP stands for Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. Apparently this diet has been proven to assist those with IBS. It basically means reduce eating foods with Fructans (e.g. legumes, garlic and onions), Lactose (e.g. milk) and Fructose (e.g. apples and pears). Other foods containing FODMAPS include honey, wheat, corn syrup, wheat, artificial sweeteners and inulin. The idea is to follow this diet for two to three months and then reintroduce foods to see if it triggers abdominal upset.
So here I am, three weeks on this action plan. I started the low FODMAP diet just a week ago. So far the nausea has seemed to nearly disappear. Before this action plan when I had my period the nausea would go up ten fold. This time when I got my period I didn't get any nausea. I used to have abdominal discomfort and pain all the time, and now I seem to have pain just in the evenings. I also quite often would have very sharp pain. It was so bad that I couldn't even move and would start to cry. I do not seem to be getting such bad pain anymore.
Having said the above I am also trying to take it easy. I'm not going out too much. Mainly staying at home playing the piano to help me to relax. I reckon this is helping too. A nice chilled hobby to distract my mind. I'm also trying to do a little exercise daily. This just consists of stretching, star jumps, reps and squats. When I believe I'm up for it I'll go on the treadmill. Not sure if I'm confident yet because I'm still getting pain everyday. I'm also still seeing the psychologist who is performing hypnotherapy on me weekly.
Another little secret, I'm taking a teaspoon of grinded carom seeds with a pinch of rock salt with water every day after lunch. Carom seeds naturally assist with digestion and reduces gas. Feel free to google. I also like to take it before going out somewhere.
I'm also drinking Sustegen everyday to try to keep my strength up and lots of water. It doesn't hurt to have ginger tea from time to time either. Ginger is a natural remedy for nausea and assists with digestion.
So overall, I guess so far so good. But still a while to go. Will keep you informed of my progress.
The Other Stuff
You would be wrong to think that after one and a half years of having abdominal pain and discomfort and nausea one would be all happy and chipper. I have had my lows, and I mean extreme lows. So if you have a friend with IBS, just keep in mind that it isn't as easy as you think. Best thing you can do is just keep trying to distract them from the condition and reassure them that they'll get better, even if you have to tell them every day.
Anyway, I really hope that some of the information provided helps others out there, and if you don't have any IBS problems then I hope at least this was a good read.
xoxo Shikz
The IBS Journey
Hi everyone,
Welcome to my blog.
I have had post-infectious IBS for over two years now and am suffering from daily abdominal discomfort. As a result from this illness I have been unable to work, socialise and do activities that I love, such as dancing.
I started with this problem not being aware of the seriousness of the condition until a year later when I showed no signs of improvement and the negative impact it was having on my life.
I started proper treatment of this condition a year after my infection in India with the help of my partner and his mother who is a doctor.
Timeline is as follows:
November 2010
Got amoebiasis from what I believe was contaminated bottled water. Symptoms included green diarrhoea, frequent vomiting, nausea, high fever, urinating blood, dizziness, numbness of hands and feet, blurred vision, drop in blood pressure, and severe gastroenteritis.
December 2010 - January 2011
Returned from India parasite free, but was having abdominal discomfort. Attempted to relieve discomfort by eating Yakult. Went back to work full time.
January 2011 - June 2011
Symptoms began to worsen with strong nausea. Went to see a doctor who prescribed Nexium. A couple of weeks to a month later symptoms were not improving and it was too difficult to cope with therefore decided to take four months off work to attempt to resolve the problem. Continued taking Nexium. Went to see a Gastroenterologist who performed a gastroscopy and found that I had GORD (reflux). He prescribed Somac. Months went on and no signs of improvement.
June 2011 - February 2012
Went back to work full time but was still struggling to cope with the symptoms. Went to see a Traditional Chinese Medicine Practitioner. Every weekend I was getting acupuncture and everyday drinking herbal medicine. I reduced socialising drastically just to try to cope with it all. Although I thought things were manageable my health took a turn for the worse at the beginning of 2012. My body no longer could even slightly cope I reached a point of daily dizziness, abdominal pain and heavy nausea. I had to take the year off work.
February 2012 - now
The year of 2012 I have been dedicating this time to recovery.
To date have seen the following:
- 3 gastroenterologists
- 3 dieticians
- 1 psychologist
- 1 homeopath
- 4 general practitioners
- 1 traditional chinese medicine practitioner
I have undergone the following tests:
- blood tests
- urine and stool tests
- 2 gastroscopies
- 1 colonoscopy
- a number of ultrasounds
- solid and liquid gastric emptying tests
- chest x-rays
- and probably more that I don't remember
What I've discovered I have:
- Gastroparesis
- PI-IBS
- GORD
- Intestinal Hypersensitivity
- Low enzyme count
- Bacterial imbalance
This blog focuses on my IBS journey in 2012 and will continue into 2013.
I hope that all those suffering will find a solution and feel better soon.
Shikha
Welcome to my blog.
I have had post-infectious IBS for over two years now and am suffering from daily abdominal discomfort. As a result from this illness I have been unable to work, socialise and do activities that I love, such as dancing.
I started with this problem not being aware of the seriousness of the condition until a year later when I showed no signs of improvement and the negative impact it was having on my life.
I started proper treatment of this condition a year after my infection in India with the help of my partner and his mother who is a doctor.
Timeline is as follows:
November 2010
Got amoebiasis from what I believe was contaminated bottled water. Symptoms included green diarrhoea, frequent vomiting, nausea, high fever, urinating blood, dizziness, numbness of hands and feet, blurred vision, drop in blood pressure, and severe gastroenteritis.
December 2010 - January 2011
Returned from India parasite free, but was having abdominal discomfort. Attempted to relieve discomfort by eating Yakult. Went back to work full time.
January 2011 - June 2011
Symptoms began to worsen with strong nausea. Went to see a doctor who prescribed Nexium. A couple of weeks to a month later symptoms were not improving and it was too difficult to cope with therefore decided to take four months off work to attempt to resolve the problem. Continued taking Nexium. Went to see a Gastroenterologist who performed a gastroscopy and found that I had GORD (reflux). He prescribed Somac. Months went on and no signs of improvement.
June 2011 - February 2012
Went back to work full time but was still struggling to cope with the symptoms. Went to see a Traditional Chinese Medicine Practitioner. Every weekend I was getting acupuncture and everyday drinking herbal medicine. I reduced socialising drastically just to try to cope with it all. Although I thought things were manageable my health took a turn for the worse at the beginning of 2012. My body no longer could even slightly cope I reached a point of daily dizziness, abdominal pain and heavy nausea. I had to take the year off work.
February 2012 - now
The year of 2012 I have been dedicating this time to recovery.
To date have seen the following:
- 3 gastroenterologists
- 3 dieticians
- 1 psychologist
- 1 homeopath
- 4 general practitioners
- 1 traditional chinese medicine practitioner
I have undergone the following tests:
- blood tests
- urine and stool tests
- 2 gastroscopies
- 1 colonoscopy
- a number of ultrasounds
- solid and liquid gastric emptying tests
- chest x-rays
- and probably more that I don't remember
What I've discovered I have:
- Gastroparesis
- PI-IBS
- GORD
- Intestinal Hypersensitivity
- Low enzyme count
- Bacterial imbalance
This blog focuses on my IBS journey in 2012 and will continue into 2013.
I hope that all those suffering will find a solution and feel better soon.
Shikha
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